Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Sally Abbey funeral arrangements for this weekend, 7/29-30/2016 A.D.

Apologies for not sharing this sooner.
My mother, Sally Abbey, died suddenly Tuesday in the morning.

She died from a stroke / heart attack.

I found her early Tuesday evening on the floor.
It seems it was very sudden, with minimal suffering.

We had visited Saturday, and she had a very nice, enjoyable day. She
seemed healthy as always.

Funeral arrangements are for visitation on Friday evening and Catholic
Mass on Saturday, at 11am at Kaul's of Roseville.

Details are on her online obituary.
Mom is with Jesus, and no longer missing Dad.

Mom's doctor appointment went OK; cold less a worry than regular pill taking.

Doctor is worried that Mom might not regularly take her pills.  He is planning on asking a visiting nurse to check up on her.

A bit of details of Harold Abbey passage from pain into Jesus's presence.

Dad passed on to be with Jesus. Mom, Sally Abbey, misses him greatly already.

Dad no longer needs medication to be free from physical pain.
He died.

I know some of you may have heard or read already, because of the
calls, visits, and writings of condolence and support. Thank you.

My father passed from life to death to second life around 3pm today, 10/28/2014.
He had been resting peacefully, with the aid of medicine, the last couple days.
Hospice was a great help with taking care of all the details.

Thank God for family and hospice

Hospice has been a great help to Dad, Mom and me.
Uncle Chuck and Aunt Luise came to visit a few days starting this evening and already have been a great help.
Dad is very non-responsive now and very thin looking.  He has not been taking liquids for the last day.
So it looks to be soon that he will get to see Jesus.
Mom seems very OK when talking to others and distracted.  She seems very sad when she thinks about Dad, but seems healthy about it.

Dad may not have long to live

(reposted after accidental deletion)

I would guess around 2 weeks.
Hospice has been able to greatly ease Dad's pain during their visits.  Mom and I have not had as much success, but our efforts have allowed Dad to have rest, although fitful.
Mom has taken it very hard at times, but often got distracted yesterday (Friday), by things such as TV news segments or a political advertisement.  She read through the political paper multiple times, repeating comments, for the election she already absentee voted for.  Last night she got very little sleep, so was more focused today.

As expected and known, but still hard to accept, Dad is dying. 
Hospice does not give him long.  Much more than hours.  Mom got the idea of about a week.  I got the impression they can not predict so well yet (or ever), but think less than a month.  Based on a pamphlet they provided of symptoms of approaching death, if Dad is following most common timeline, it will be about 2 weeks.  However, the pamphlet said very clearly that everyone is different, and estimates are very approximate.
Mom did not sleep last night but was able to sleep this afternoon some while Dad was also soundly sleeping.  Mom gets very saddened and stressed because she sees Dad in pain, and does not know of anything she can do to help him.  Since Dad has not been wearing pajamas the last couple days, she sees more clearly now how much weight he has lost.  His very thin frame has helped her understand and acknowledge that Dad is very sick with the cancer.
When Dad is responsive, he seems confused much of the time.  At one point he asked me who are you.  Another time, what year is it.  Yet another time he said he did not know where he was.  When dealing with items such as medicine or moving, he seems very clear minded.  Some times his interaction is just moaning in pain.  Once I heard him say a short prayer to God for help.
A positive of the day was Mom was able, for the first time ever, to get Dad to take some pain relief medicine when he did not want to.
Dad occasionally will try to get out of bed to go to the bathroom.  He does not have enough strength to even sit up, but he forgets that.  In the morning he was enough out of the bed to be in danger of falling out, but the hospice help thankfully were able to be called in from outside to get Dad back in bed.  Later in the day he did not seem to have as much energy to get as far.
Mom had a frustration with the liquid pain relief medicine bottle.  She could not get the child proof cap off.  Thankfully I was there to open it, and we did not screw it on tight again.
Much thanks go to Cousin Sean and Aunt Luise and Uncle Chuck.  So far, Mom's attitude has been affectionate to them, so they have been able to be a real blessing to Mom and Dad.  Mom has enjoyed talking to Aunt Luise on the phone, and is very much looking forward to an expected visit from them.  Cousin Sean's visits have been encouraging.  Dad even asked for his nephew today, and I am very glad that I could say he was planning on visiting tomorrow.

Switching from Home Nursing care to Hospice

I requested the visiting home nurse service to switch to hospice.  Dad was very minimally responsive today, and really needed more help than I could give.  In particular his pain and discomfort did not allow me to get any of his pills in him today.  He also was not strong enough to stand, so I could not get him out of bed at all.

Dad consistently very tired.

Dad did not get up today until around 4:30PM.
He always was a night owl, but this is ridiculous.  It may be that he had gotten up earlier and went back to bed to rest.  However, he had not yet taken his "morning" / wake-up time pills.

He seems to be in a lot of pain, which is likely part of the reason for resting so much.  Resting so much means he does not get some of his pills spaced out as much, which is possibly a reason for some of his pain.  Alas.

He seems to be getting enough liquids and food, but it is hard to tell.  He for sure is not getting more than enough.  He lost a lot of weight and could stand to add some of it back.

He seems to be getting discouraged, and sometimes wishes God would take him to heaven quickly and simply, such as via a heart attack.  However, as he said, as a Christian he does not get to make that choice, but instead has to wait for God's plan.

Mom seems to be getting more easily distracted.  While she had a visitor, she got a phone call.  She answered the phone, found out who it was, and then hung up on them without clearly saying that Dad was resting and that she had to go because of a visitor.  I wonder if her memory is getting slightly worse, or more confusion and unusual events around her are causing more challenges.

They both seemed to have a nice visit with Cousin Sean today, although Sean was greatly worried about them.

Dad and Mom continuing OK

Dad was OK today, but in quite a bit of pain.  He took some of the stronger pain medicine in the late afternoon.  

 
Dad is getting slightly weaker day by day. 
He was not feeling up to getting up to get his own dinner tonight.  So I got him his request, a can of mixed fruit.  I am guessing he will start relying on Mom to feed him now.  They both reject the idea of meals on wheels, because they do not like the meals (portion and content).  I am considering seeing if they would accept food delivery restaurants, like pizza and Jimmy John's subs.  Growing up they were always strongly avoided due to unneeded cost and due to discomfort of knowing how to tip.

Mom is sometimes sad, crying at times, but making it through as if all was normal at other times, and bickering or upset at Dad at other times.  I guess a healthy mix.
Mom said she would be uncomfortable to drive, due to her legs being shaky.  So while she wants (/ demands) the permission to drive, she seems to self-recognize that she does not have the ability.
She also today said that she hoped I was not expecting her to move after Dad dies.  At least not for a while.  So she is still attached to the house, as I suspected she would be.

Dad in pain, and somewhat depressed.

Dad did not take any pain medicine over the last week, in part out of a desire to avoid narcotics in an attempt to get in a condition to drive.  However the pain is difficult for him.  I feel it is depressing him as well.  Hopefully the doctor visit on Monday, 10/13, will encourage him to take some pain medicine again. 

Dad coming home today, 10/2/2014.

Dad's progress in the nursing home continued well.
So he is cleared to come home today, 10/2/2014, Thursday.

He and Mom are both very happy about that.

He has been assigned to use a rolling walker to help walk.
In general, he seems to be the healthiest he has been in quite a while.

Of course, I understand that long term outlook is different, but for the near term, I have good hopes.

I pray that Mom and Dad can get used to living together again.  I also ask that being in the same house will help reduce their bickering, since their worries can be lessened since they are together.

Dad ready for second cataract surgery.

Good news of day: Dad is cleared for cataract surgery for his second eye.  The first eye surgery went well.  Dad's eyesight is getting to be a real nuisance for him, so this is good news.

It has been a big positive that Affordable Home Care has been driving Mom to visit Dad.  That has made things much easier on me.

Dad finished with chemotherapy. Estimated 3 weeks till comes home, and 6 months till leaves for eternal home.

The nursing home stay is going well for Dad.
The nursing home rehab is estimating that Dad will be able to come home in October.  He has already greatly improved.
Dad decided he cannot take chemotherapy anymore.
The doctor is estimating that Dad has less than 7 months to live, perhaps 6, perhaps less.
Mom, Dad and I all seem to be taking it well, in large part because we have been halfway expecting this for a while.

Dad moving to Church of Christ Care Center.

The plan is that Dad will move to Church of Christ Care Center at 5pm by ambulance from the hospital today.

I am praising God for this.

Dad going to nursing home; pausing chemotherapy

As heard before, due to the payment methods and extreme costs, nursing homes can not accept patients undergoing chemotherapy and the side-effects they bring.

So Dad will be pausing chemotherapy while he is placed in a nursing home.

The hope is that Dad will regain enough strength in the nursing home to be returned home.  At that point the chemotherapy should be able to restart.

So now back to the point of praying that Dad gets a good nursing home, and Mom can manage home alone and getting to and from visiting Dad without too much difficulty.

Dad going to nursing home; unclear if continuing chemotherapy

Dad is recovering ok in hospital,  but still throwing up some on a liquid diet.
Due to his not being able to handle chemotherapy while living at home, he is going to be moved to a nursing home.
It is unclear if he will be able to continue chemotherapy from the nursing home, or the focus will switch to hospice.  Part of the decision will be what the health insurance will cover.   I hope to learn more Tuesday.
Dad is unsure if he will ever come to live at home again.  Mom seemed to take it well.
I think they both are being overly pessimistic at this point.   Hopefully I will find out more later...

Dad doing better in hospital, but still vomiting

Dad looked and sounded much better this afternoon.

His cancer doctor mentioned the possibility (likelihood?) of him being sent to a nursing home / rehab center after getting out of the hospital.  Both Mom and Dad are saddened by that idea, but seem to be accepting of it.  Dad's main concern is confirming if it would be covered by their health insurance.  A secondary hope is to get to a desirable place.

Dad was put on a liquid diet, due to his still vomiting.  Even with a liquid meal, he still had trouble keeping food down.

Dad dehydrated enough that admitted to hospital.

Dad was weak again today.   This late morning he drank some water, and a nutrition drink.   A bit later I asked him to try some more water.   He said he felt nauseous, but I encouraged him to try a bit more.   He did,  and a bit later he thew up.   So much for getting the nutrition drink and pills he had earlier.

The raised toilet seat had been helping a lot.   The main challenge in that area has been that Dad has developed painful hemorrhoids.

Eventually,  we went to the chemo doctor,  and doctor felt the dehydration was serious enough to admit Dad to the hospital.   So Dad is at St. John South Macomb hospital again.

Transportation mostly solved; nutrition good recently, but still a concern.

Yesterday afternoon Dad, in despair, called me over to the house to help.  He wanted help cleaning himself and getting food and water.
I was able to help some.
Also he was able to have a breakfast drink this morning, a sandwich for lunch, and a reasonable dinner.

Today he also got a raised toilet seat that goes over the existing toilet.
Dad was also able to get up from the toilet seat unassisted after the placement of a seat riser on the toilet.
The physical therapist was there, and seemed to feel Dad would have enough strength to do his business unassisted.

His cancer doctor today thought he looked a lot better, mainly because of his body posture reflecting his less pain and more strength.  Chemotherapy is continuing Wednesday.
Dad had felt weak enough that he decided to ask the Doctor for a walker.  Doctor felt that Dad should not give in yet to getting more of that type of help, and that for now he should keep using a cane.

As part of the visit to the doctor, the hired help came along to learn where the doctor's office was, and the procedure that had been used to transport Dad.
It looks like the hired help will be a huge help for transportation.  They helped Dad down the stairs safely, and were able to drive Mom's car home without any concerns.
Dad requested, and the hired help agreed, to also try their vehicle to see if it works better for them than Mom's car.
They will cost slightly more than taxi service, be much more helpful with steps in and out, and be understanding of the situation.  Also, riding in Mom's car is much more comfortable for Dad than one of the taxis he was in one-and-a-half weeks ago.
Mom did not question today Dad getting a ride from someone else, nor that she would get a ride tomorrow to her doctor's appointment.  Now that the arrangements are being made in somewhat of a whirlwind, she does not even seem to be asking the question of why, and why does she need help driving.  Hopefully the question will not come to her mind, or be answered sufficiently in some non-threatening way.

There is still a concern of Dad getting water and nourishment.  We are still working for agreements and arrangements so hired help can work to help with that as well.  Alternatively, if Dad can gain enough strength to get himself to the refrigerator and table himself, maybe the hired help will not need to worry about that part.

So praise God for the extra help, and Dad's improvement of today anyway.

Dr. Kent Brantly discharge statement shows a willing servant of God.

Praise God for His servants who are willing to risk their lives for the chance to save others' physical and spiritual lives.

I think these heroes need to be publicized, as this is a respectable American Dream.
May God continue to bless the world through America.

May God give wisdom to the medical and spiritual help from so many nations currently trying to help western Africa deal with this disease.

Dr. Kent Brantly's statements are available in text or in the video below.

Dad was weak from dehydration, chemo, maybe hunger. Still weak but sounds better. Hired help.

Wednesday on 8/13, when I had previously seen Dad, he seemed to be doing OK and taking some care of self in regards to liquids and eating.

On Monday, 8/18, Dad seemed very weak before we went to his chemo doctor's appointment.
Dad, if I read the scale right and remember right, lost over 5 pounds in one week.  He no longer has extra weight to lose.  Dad mentioned that he needs to eat more than the one meal a day he had been getting. The nurse also confirmed my suspicions that he was dehydrated.  They gave him some fluids intravenously.

His tongue was dry and sore (likely in part due to dehydration). That made drinking and eating all the more difficult.  Doctor gave him some medicine to numb his mouth to make eating and drinking easier. It seemed to help, but Dad barely had the strength and motivation to eat just a little bit. I am hoping that what he did eat, the fluid shots, and nutrition drinks, will revive him. I am also hoping that the home care will also help once set up.   His visiting nurse will be sure to check and discuss nutrition and drinking fluids with Dad when she visits tomorrow, 8/21.

The meeting with Affordable HomeCare went well. Dad decided to sign up, and Mom did not protest. The first session is Monday, 8/25/2014.
Affordable HomeCare is willing to help with transportation, grocery shopping, and much more. The limiting factor is more likely to be my parents than their willingness.  The main limitation is anything remotely medical is not allowed.  They will start out with a plan for primarily transportation related days / activities.  I have hopes that my parents will get more comfortable with other items such as pill reminders, dish washing, laundry, whatever my parents will accept.

Dad yesterday was talking positively of the service.   Mom seemed OK with it until Dad suggested, among other things, that they could do grocery shopping for them.  She was very upset with that idea.  Cousin Sean tried to convince her that they will not do anything she does not want.  They will treat her like a rock star.  During the introduction meeting we had mentioned them going shopping with her, and taking over when she gets tired. That was fine. But she does not want to stop going to the grocery store.  That is her time away from the house.  Thankfully, the HomeCare team seem to understand the desires of people to do as much as they can, and only be there to help as requested.

Dad is having trouble getting up from seats. Including toilet seats.
Monday night, 8/18, after waiting for 3 hours of Dad trying to get himself up, Mom finally called the fire department to help.
We are awaiting a toilet seat booster on back-order from a catalog, currently estimated for end of the month. Cousin Sean said he might be able to get one from a relative who no longer needs it.
Yesterday he was able to get up out of seats three or four times with great effort.  However, the 5th time he needed Cousin Sean's help.

Mom's surgery for her nose skin cancer went well yesterday, 8/19.
She has a big bandage on her nose.  She feels kind of awkward about it.  She is self-conscious and is not crazy about going outside with it, since she looks funny in her opinion.  She should keep it on for 48 hours.